Hi, was diagnosted in jan 2008. I am currently on Copaxone and steriods. I’m scared. I feel the brain doctor is dimissive of my complaints and keeps pushing pills towards me. Thinking about a new one. This one even after telling him yesturday at 6 month visit of episode in Nov feels there is no change and I may want to consider less frequent visits, like maybe yearly. Maybe he is used to making ones life comfortable till death, but I want to get back to more normal behavior. My profile says it all. I just need to talk with others in my boat, with or without the same symtoms. Thanks.
I’m sorry to hear you are having such a hard time with this disease. It really can be very hard to deal with. With regard to the fatigue, I would try and do what you need to do at the beginning of the day when you are more rested and then just relax. Accept that you will not have the energy reserves to do what you used to be able to do. I think you need to get your family and kids to do more around the house and also to educate them and involve them in what the familly can expect with a diagnosis of MS.
i am in Australia and I have found joining a forum like this one or even a group that meets physically can really help because you can talk to people with the same condition and they understand what you are going through.
oh no, please dont loose hope! I have had ms since 1997.... cortisone (alot of it, made me go a little crazy), rebif (didnt try it to long), now betaferon, not saying its the best because i havent had anything else in six years, but its kept me stable!
On monday went to a new doc, a neurosurgeon, who has now put me on "lioresal" (anyone else take it), its a muscle relaxant, VERY excited hope it works, so you see there are other things around, things that my old dr never really bothered to speak to me about , because the way they see it is, well, you have ms, sorry about it..... deal with it!
so my suggestion to you, is get another dr, one that is interested, and search till you happy..... started having a better relationship with my drs receptionist then with her, so my family, forced me to move on, stuff loyalty! we need to know whats going in in the medicine world, maybe not a cure as yet, but there are things to better our lives!
New here and scared - Multiple sclerosis forum - General
