Hi, I’m new to this site. (I’ve never been on a forum site before)I would so appreciate it if someone could read my story and give me some advice. I’m at a bit of a loss. Still waiting for the mri test but feeling so yucky. Could this be something else? thanks
Hi, Stay positive and wait for your results. This site is good and I’m only too pleased to cotact you. Can I add you to my friends list ? You can ask me whatever you like, I will try to be of help where i can I have had MS for the last 8yrs Stay in touch. Kindest regards, Mary. xx
HI just to say welcome to the site, if you ever want to chat or ask anything, just send me a message, hope all goes well for you, and good luck with your results, i will keep my fingers and legs crossed for you. sophie x
Hello everyone, I’m new to this site also. I’m new to any kind of forums/chats etc. And i am also fairly new to MS. It was thought that I may have had it in 06 but I never really followed up because I felt ok. Hindsight is 20/20 right? Last week I had the dreaded ear infection which apparantly caused my 1st real exacerbation & boy does it suck! So do the doctors here. I’m in South Florida & I can’t find anyone to give me any answers or treatments. I realize there’s not a "cure" but aren’t there meds or therapies or SOMETHING to help with the attacks? I can’t use my hands very well at all, it feels like my fingers are going to dislocate if I move them the wrong way & I’m numb in all extremities & my torso. In addition, I’m having such a hard time walking that I have to use a cane or walker, a shower chair when I want to shower... & I’m just so sick of all this! I don’t know anyone else who has MS & it feels as though no one can understand how frustrating it is. Although I’m sure you guys can! I’ve been struggling w/this attack for 9 days now, does it get better? Plllleeaasse somebody tell me that it gets better! I’d also like to know how you handle telling, or not telling, people. I’m 29 yrs old, so when I’m using an assistive device people I don’t even know ask if I’m ok, what do they expect me to say?! Why do they even ask?! I’m so sorry to just come on here & start venting but I’m lost. I honestly don’t know where else to go or what to do. I hope one day I can help out a newcomer & answer questions because it’s a scarey place to be.
Last question, I actually registered for this site because while I was researching MS I saw something about an MS simulator here. I read about it being at some mall before or something & then on this site there’s a list of 3 symptoms to click on & it says -ok now you have...whatever... then you read about whatever that sx is. That’s not exactly simulating MS to a healthy person. Is there more to it that I’m missing? Anyone know?
Thanks in advance for any responses! Best of luck to everyone!
Hello - I’m new to the site too, but not to MS, I guess, although its taken about 25 years to get diagnosed. Everyone has a different manifestation, although some things seem to be common. I have numbness and incoordination, maybe similar to yours, but it’s only happened every few years. Every time (for me) after about 3 weeks I see a marked improvement and within a few weeks, it is pretty much back to normal. That’s not to say it will progress like that for you, but it definitely doesn’t mean it has to be permanent.
fyi - I had a nice physiotherapist who visited me when I was in the hospital this last time (2 months ago) and she recommended things like card-playing to improve coordination (this time, I lost feeling and coordination on my left side and I’m left-handed, so that was inconvenient ;-) I did find it helped me re-learn motor control at a functional level in the first couple weeks, but I don’t know if it made any difference in the end, because it is quite distinct when I start to get the feeling back and such. I think if the nerve is healing, it will come back fine, but if maybe it is a different stage and won’t heal, even then you could still gradually re-train yourself to use a clumsy limb. Physio may be worth a try, even to give you better mobility until the nerve gets better.
Hang in there! It’s rotten during an attack, but it can get better! I’ve been lucky - it’s so long between attacks, I forget I have it! I wish you a speedy recovery.
