I am so disappointed with the health system.....For about 15 to 20 years I have had various symptoms come and go. Double vision initially, vertigo, then foot drop on right, incontinence, double vision back again, paralysis which comes and goes in HOT HOT WEATHER. This is all over the course of a number of years. I had another bad exacerbation this summer when it was super hot out when I lost the use of my legs AGAIN. The feeling has come back for the most part, but have a severe residual weakness which has left me dependent on a wheelchair. I am frustrated in that because the neuro doesn’t have anything jumping out at him on the MRI that he won’t even assist in treating the symptoms. My question is: Is it not possible to have MS and not have visible lesions? I am tired of being told it might be CFS, or Fibromyalgia, or Somotization Disorder!! This is a VERY REAL disability which needs to be treated or at least managed. I would love to hear from anyone else that is having similar issues. Thanks for listening to me rant on about this but I am very angry right now with the Doc.
Have you tried visiting another doctor? I did so...My first doctor wanted me to have an aborsion! And unfortunately, I knew nothing about MS, he said it was a neuritis behind my eye. This situation lasted 4 years. Until I went to see another doctor. And he started treating me with betaferon immediately. I don’t feel any better physically, but at least I know it won’t go any further
I had a very similar situation...went through 3 neuro’s..one told me that it all a mind over matter issue, and I need to see a shrink...drop foot and all! When I DID go see one...she had been a nurse turned shrink (go figure!)...she told me after 2 sessions that she believed I had MS!!! Finally got the right doc who knew what to look for...after 2 visits...got the DX and on Avonex...that was in 2001...went from 8 episodes a year to 2. Look for a doc who specialized in MS or autoimmune diseases. I have also learned that our dis-ease,Lupus and Meiner’s Disease (which they thought I had in the beginning) have the same baseline sx.
